Completed projects

AIRR-Studie (Attention to Infants @ Respiratory Risks) – Description of healthcare utlisitation and estimation of related costs of Bronchipulmonary Dysplasia (BPD) and/or Pulmonary Hypertension (PH) in Germany
Team:PD Dr. L. Schwarzkopf, former collaborator: S. Witt
Co-operation partner:Perinatalzentrum der LMU, Campus Großhadern, Ludwig-Maximilians Universität München
Perinatalzentrum der UKGM, Standort Gießen
Duration:2018 – 2023
Description:The observational AIRR study analyses the course of disease, the health-related quality of life and the healthcare utilization of preterm infants with and without Bronchipulmonary Dysplasia (BPD) and/or Pulmonary Hypertension (PH) and estimates costs of care.
Objectives:
  1. Description of typical health care seeking patterns for preterm infants up to an age of five years
  2. Assessment of costs of care and health-related quality of life considering disease severity
  3. Identification of influencing factors for disease progression and costs
  4. Comparison of different therapeutic regimens and disease management approaches with regard to clinical course, costs of care and health-related quality
Methods:Recruited patients respectively their parents are questioned retrospectively at routine review periods about their health-related quality of life and healthcare service utilization. Furthermore, clinical outcomes, medication profile and parents’ absenteeism from work (i.e. indirect costs) due to the illness of the infants are also documented. The analyses will be stratified for preterm infants with and without BPD/PH. Besides a description of current BPD/PH management patterns, the monetary countervalue of health care services used will be assessed to estimate costs of care for pre-term infants with the respective disease. Subsequently, the crucial impact factors on direct and indirect costs will be identified within exploratory analyses. Finally, it is intended to outline common patient pathways within the health care system and to identify distinct patient-clusters receiving different types of care.