Current projects

HILDA - Health Care in ILD Ambulance visitors
Team:PD Dr. L. Schwarzkopf, P. Maqhuzu, former collaborators: S. Witt, B. Szentes 
Co-operation partner:Prof. Dr. Michael Kreuter; Thoraxklinik, Universitätsklinikum Heidelberg
Dr. Thomas Bahmer; Dr. Martin Claussen; LungenClinic Grosshansdorf GmbH
Duration:Until 30.04.2018
Description:The HILDA study is a longitudinal observational study, which collects data about healthcare utilization and health-related quality of life of ILD patients from two German ILD clinics at routine ambulance visits.
Objectives:The aim of this study is to analyze the health-related quality of life and the costs of the healthcare utilization in different ILD subgroups. Additional objectives are a description of healthcare utilization patterns and an exploration of the relationship between course of disease and health-related quality of life.

Between November 2016 and April 2017 every willing patient who visits either the Thoraxklinik Heidelberg or the Lungenklinik Großhansdorf has to fill in a questionnaire about his/her healthcare utilization and health-related quality of life. Moreover, we also collect data about clinical endpoints and comorbidities.

Follow-up data will be collected after the recruitment phase for a year, in approximately 6 months distances, so every patient will have data up to three time points.

We will calculate the cost of healthcare utilization per person at the inclusion in the database as well in longitudinal analysis from the societal perspective. The start is planned for the second half of 2017, alongside with the analysis of the health-related quality of life data.